Thank you to Mel for posting this on your blog so I could "meet" Kelly, a very inspiring young woman with Down syndrome. Kelly is an amazingly determined young woman who has not allowed Down syndrome to hold her back in any way, in fact she has made a point to set many goals for herself...one of them being to get her driver's license, and SHE DID IT, how great is that!?!!!
When Reid was first born the question of "Will Reid be able to drive?" never even entered into my thoughts...not on my own that is....however, I can vividly remember our first visit with the geneticist when Reid was JUST 2 DAYS OLD...and she asked us what we knew about Down syndrome. Quite honestly we had to share that we didn't know much...so she went on to give us the clinical description and expectations...as I sat listening, trying to hold back the flood of tears waiting to dispel uncontrollably at any moment...the trigger words were unleashed, and as if being kicked in the stomach I heard her say..."and Reid won't drive a car...he will most likely use bus transportation, or ride a bike, or he will rely on a family member to drive him places". That was it, I fell apart...I had just heard that my child would have mild to moderate mental retardation and now...that he wouldn't ever have the capability to drive a car. Ughhhhh....really now, did I really need to hear that when he was just 2 days old? I remember going back to my hospital room, clutching my pillow and just crying and crying until I couldn't cry anymore. Later that evening I spoke with my dad on the phone and shared with him what the geneticist had said and he in turn had a story to share with me that he had heard earlier that day from a client of his...a story of a couple with Down syndrome living in his area who had met, married, had jobs, and the husband actually had his driver's license and HE drove the two of them around town...no buses and no bikes, unless they wanted to use them.
Where oh where are THOSE kinds of stories that a geneticist can pull out of his/her bag of knowledge when your baby is only 2 days old and you need more than anything to hear words of encouragement??? Well...here is one of those such stories...Kelly thank you for sharing with us your amazing victories and inspiring life!
Thursday, September 24, 2009
Wednesday, September 16, 2009
Sunday, September 13, 2009
- Invite friends to your home for "Dinner with a Cause", in this case our cause will be a waiting Reece's Rainbow Child.
- You can decide whether to have it catered, host prepares meal, or pot luck style
- Decide on a a suggested donation, we usually say $35 per person for suggested donation, but that is up to you.
- Dedicate a portion of your evening to sharing with your guests about Reece's Rainbow and the need to get these children out of these orphanages before being institutionalized. (I am planning to share a video/documentary that I found on You Tube....and hook it to the TV, I also thought of having the Gifts video (see below) playing throughout the evening as others were mingling)....I will send these resources over to you so you can do the same.
- The donations will go directly to the child's fund and are 100% tax deductible
- Leave me a message here on my blog or email me to let me know you would like to participate by hosting a party. We will finalize details off line. firstname.lastname@example.org
If you like this idea...please feel free to blog about it and link it back here so we can get as many people involved as possible.
**You will want to pause my music at the bottom of the blog before viewing the video.