Thank you everyone for your comments and emails regarding my last post about Reid's bowed arms. I took Reid to the orthopedist to have the Dr. look at his arms....and what we found was that it appears to be skeletal and not just muscular as we had thought. It turns out his little bones did not develop correctly in utero in that his radius is out of place...The doctor said it is called Radial Head Dysplasia resulting in the inability to supinate (inability to turn palms straight up). I attached two x-rays showing his left arm and one with the Dr.'s markings as to where the radius really should be located (both of his arms have "dysplasia"). The Dr. felt that Reid will most likely accommodate his mechanical loss of supination with shoulder and hand motion but wants us to also check in with another specialist in his field who he believes to have more experience with this type of presentation. As it looks now we basically have two options...do nothing and watch and see how he does or we could do surgery when he got a little older called a forearm derotational oseotomy. As the last few days have gone by and we've continued our research more questions have come up for us and so we have decided to go for the second opinion to further clarify if there is anything we need to be doing occupationally to help him since there are sensitive ligaments and soft tissue that may still need stretching. We have also found that if we do go down the surgical road it is better to do it at a younger age than older...and also found that the "bowing" tends to become more noticeable around 2 years of age which explains why it came on our radar again. But...then on the other hand we have also found people who have lived with this their whole life and commented that it did not affect them in any way, except one said he had a hard time bowling. Aghhh....that was nice to hear. If not being able to bowl is the worst of it...then we are in good shape. :) So, for now we watch our cute little bowed armed Reid and help him to accommodate the best he can while we wait to get into the other specialist.
I am blessed to be married to an incredibly loving and kindhearted man, Toby, and I am a mom to 2 boys...I am in the chapter of my life that involves baseball games, homework, playdates, diapers, and dump trucks. It is simply the best! With every part of my being I love being "Mom" and have learned the depth at which my heart can go when our youngest son was born with Down syndrome. This blog was created to connect with other families on this same journey that an extra 21st chromosome presents. Join me as I journal about Down syndrome, life, and raising Reid and his big brother Luke.