Showing posts with label Welcome to Holland. Show all posts
Showing posts with label Welcome to Holland. Show all posts

Thursday, September 24, 2009

Will My Child Drive a Car??....Possibly, Check This Out!!

Thank you to Mel for posting this on your blog so I could "meet" Kelly, a very inspiring young woman with Down syndrome. Kelly is an amazingly determined young woman who has not allowed Down syndrome to hold her back in any way, in fact she has made a point to set many goals for herself...one of them being to get her driver's license, and SHE DID IT, how great is that!?!!!

When Reid was first born the question of "Will Reid be able to drive?" never even entered into my thoughts...not on my own that is....however, I can vividly remember our first visit with the geneticist when Reid was JUST 2 DAYS OLD...and she asked us what we knew about Down syndrome. Quite honestly we had to share that we didn't know much...so she went on to give us the clinical description and expectations...as I sat listening, trying to hold back the flood of tears waiting to dispel uncontrollably at any moment...the trigger words were unleashed, and as if being kicked in the stomach I heard her say..."and Reid won't drive a car...he will most likely use bus transportation, or ride a bike, or he will rely on a family member to drive him places". That was it, I fell apart...I had just heard that my child would have mild to moderate mental retardation and now...that he wouldn't ever have the capability to drive a car. Ughhhhh....really now, did I really need to hear that when he was just 2 days old? I remember going back to my hospital room, clutching my pillow and just crying and crying until I couldn't cry anymore. Later that evening I spoke with my dad on the phone and shared with him what the geneticist had said and he in turn had a story to share with me that he had heard earlier that day from a client of his...a story of a couple with Down syndrome living in his area who had met, married, had jobs, and the husband actually had his driver's license and HE drove the two of them around town...no buses and no bikes, unless they wanted to use them.

Where oh where are THOSE kinds of stories that a geneticist can pull out of his/her bag of knowledge when your baby is only 2 days old and you need more than anything to hear words of encouragement??? Well...here is one of those such stories...Kelly thank you for sharing with us your amazing victories and inspiring life!

**Make sure to pause my music at the bottom before viewing the video. :)



<span class=

Sunday, August 31, 2008

Welcome to Holland

After Reid was born one of Luke's preschool teachers told me of this poem, Welcome to Holland. It lifted my spirits then and again this evening when I came across it on the internet. I am actually loving my detour to Holland...I didn't know I would be visiting...but I'm here...been here 20 months now and I'm adjusting well to my new surroundings. Luke is learning a lot about life on this trip too and he'd tell you there isn't any other place he'd be if it means being able to be with his "best brother". From time to time we'll be posting about the sites we see here in Holland and the things we are learning from this trip.

Welcome to Holland
by Emily Pearl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel.

It's like this... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum, the Michalangelo David, the gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes and says, "Welcome to Holland." "Holland?" you say. "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place. So you go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around, and you begin to notice that Holland has windmills, Holland has tulips, Holland even has Rembrandts. But everyone you know is busy coming and going from Italy, and they're bragging about what a wonderful time they had there. And for the rest of your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned." The pain of that will never go away, because the loss of that dream is a very significant loss. But if you spend your time mourning the fact that you didn't get to Italy, you will never be free to enjoy the very special, very lovely things about Holland.