Why I Write...

Well, I checked my stats tonight and I have written, three... gulp, 3 posts so far in 2012. That's not so good. Have a lost my mojo?? Not so much... just got pulled under with this thing called life. I've wanted to come back... wanted to write... have actually had lots on my heart to write about, particularly with Reid transitioning to a general ed kindergarten this fall and all that brought us to that crossroad.... but my blog laid silent most of the year... and needed to I suppose for a bit. I don't like fast and furious in my life... I like slow and steady much better and in order to try and pull in the reigns a bit when life felt like it was speeding up much too fast I decided to set aside a few things... and my cherished blog was one that needed to take a back seat. But... my fingers have been itching to type and my heart and head have been housing stories I've wanted to share... 

And yes...I know this is totally vain but I really truly think that the fact that my blog was still stuck in Christmas mode the whole year through bothered me to the point of well, silence. But weeks have a funny way of turning into months...and well, we are now 7 weeks away from Christmas... and the fact that in the last 24 hours I have purchased 3 Christmas presents as well as the wreath below... well, I deem the background appropriate enough to say, "You're close enough to Christmas sistah... hold your head up high and type away!".

So type away I will... and what the end result of tonight's typing will be I am not at this moment sure of, except that I know that I have been wanting to write about a question I was asked recently....
A few weeks ago I was asked by a new friend, who also has a sweet son with Down syndrome... "Why do you write?" as in my blog.
I type my answer here maybe even more as a reflection for myself than it is meant to be informative in this space... but here is my answer;
My dad lives out of state, so when Reid was born I called him from my hospital bed to tell him the news. I remember clutching to that phone needing to hear his voice on the other end, I needed to hear my own parent tell me it was going to be okay, which he did but just as speedily as those words came off his lips so were the words, "Are you ready to write kiddo?". I cried and told him that this, Down syndrome, was not what I had ever envisioned myself writing about. He knows my secret passion to write because we both share the bug~ his to write a novel and mine children's books. But, he encouraged me to write, about this, Down syndrome. I filed it in my head not knowing what I would ever do with that comment, but filed it knowing it was a special exchange between the two of us.
About 6 months later I stumbled upon a site that fed blogs through it... all of these blogs were written by family members who had a child with Down syndrome. What??.. I could hardly believe it. Night after night once the boys were in bed I would scour the site and all the blogs and read post after post of families just. doing. life. And... they were happy. Life did not end for them. The theme I began to see in all of them was that Down syndrome was a non issue, it was a blessing to them, it was what molded them into better versions of themselves... and it was fuel to my soul. Truly... the idea that I could peer into someone's life and see how they were doing life along this new journey I was on was so helpful to me. I gleaned resources on top of encouragement, and began to put into focus my philosophy of raising a child with special needs. I could feel myself taking a little of this and a little of that from each site and each family.... without them even knowing it because they were right there- on the internet- for me to learn from. I. am. so. grateful. for those blogs in the early years. And then as crazy as it sounds... many of those strangers I gleaned from in the beginning... have become friends along this road. People I feel invested in, people I never would have met had it not been for this extra little chromosome that our children share. I need this connection with others who also have a child with Down syndrome as much as I need the connection with my childhood friends, and other close friends I've made in my life. 
That... that's why I write. To connect. And... if there is a family that stumbles upon my blog that is new on this journey and can see the same thing I saw in others.... that we are happy, that we love our boys to the moon and back, that Down syndrome does not define our youngest son- that he is more like his brother and his friends than not- that we are not sad anymore that he has Down syndrome- that we feel so incredibly blessed... then I say thank you to those who came before me and showed me the beauty of writing and sharing so that others might get their legs about them like I did. 
"Yeah Dad, I'm ready to write...."
...and as for what my little men have been up to while my blog has laid silent, here is a snippet... 

Their first puppy

Best Buddies Friendship Walk 

Preschool Graduation

All Star baseball

Summer fun

First Day of School~ Kindergarten and 5th Grade

Robert H. Goddard and his superhero sidekick

...and just today~ Mummified at a birthday party

 That wreath up top I bought today?... bought from a friend on the other side of the US who I met via her blog when she was still pregnant with her sweet Bennett, who also sports an extra chromosome. Thanks to her writing, I got to celebrate his birth and pray for him when he was going into heart surgery months later. I love this little thing called writing connecting.

From Our Home to Yours....

I Love You to the North Pole and Back!!

I have to confess, my soon to be 5 year old had not had a full blown birthday party until this year. His birth date is December 28th, and that... is such a hard time for a party. I have felt guilty over this little issue and vowed to myself that THIS year Reid would have a party with his school friends. THIS YEAR, this year, this year, this year....


But seriously, this year WAS going to be the year and it turns out that once I embraced the whole winter~Christmas theme that comes with this time of year my mind flooded with ideas and I began to wonder why I was so stumped each year with how best to pull off a party in December. ...Give me a summer birth date and I have ideas galore, Luke has benefited from a fun party or two in his little lifetime, but poor Reid~ Nada.


The more ideas rolled in, the more obsessed excited with the thought I became. A huge inspiration came after reading this post on Kelle's blog. I had already thought about having snow delivered but had not fully developed my ideas until I read about her North Pole party she hosted for her girls to just "embrace the fact that Christmas was encroaching"~ and that's when the flood gates opened..... "THAT'S IT" I thought....Reid would indeed have a birthday party... and it would be hosted in no other location than the North Pole (AKA my front yard) and, it would be hosted by none other than Mr. and Mrs. Claus and a cute, spunky 10 year old elf who also goes by the name Luke. Once I got the plan set in motion I reached out to Serendipity Soiree who made these invitations for me, I LOVE them, she did such a great job!
Toby knew something was up when he noticed me typing furiously one night and giggling all the while and asked what was going on... I smirked and told him that I had an idea for a party for Reid....and that, gulp, it was going to require him in a costume..... and, gulp.... memorization of a script! He gave me the o'l, "Oh no, not again...." look. He has been through this with me before, once I hosted a Scooby Doo Mystery birthday party for Luke and Toby was our "Present Thief" and he was given strict orders to follow the script I had typed out for him! Oh, the joys of parenthood..... but my amazing hunk of a husband took it all in stride and was the most lovable Santa that day, and even threw in his own spontaneous dialogue that made me howl with laughter!
Once the invitations had gone out to Reid's classmates one of the moms stopped me and said, "Just so you know..... (insert sweet little girl's name) is telling EVERYONE that she is going to the "real North Pole" for Reid's party!!". We laughed together about it, but then the pressure MOUNTED..... I. Must. Transform. This. Place. Into. The. North. Pole.... So, operation North Pole went into full affect. 1st, I literally walked up to a neighbors house a few streets over that I had never met and, gulp, gave them an invitation and asked if I could borrow 3 of their huge inflatable lawn decorations to help "set the stage" for the North Pole. This stranger woman surprisingly did not close the door on my face but smiled huge and said "Of course!" 2nd, I scoured the Dollar Tree and 99Cent store for as many decorations as I could find to "North Pole" the place up (though I had bought gobs of stuff, gobs of it never made its way out the door that day.... we had rain the day before so my decorating time got cut short~ but I think it was North Pole enough to do the job). 
Once the decor was taken care... the kindergarten teacher in me began to relish in the fact that there were so many fabulous "stations" I could have the children rotate through... and decided that "Mrs. Claus" would read a story to the children to help conclude the party while Reid's dad ran inside and changed into his Santa costume.
Anyway, here is what our Sunday looked like around here.

 

Luke was such a great sport being our "Chief Elf"! ...you could tell he loved every minute of it! ...Truth be told, he even slept in his costume that night, said it was "comfy" ;)

 

Our neighbor graciously made these balloon candy canes for all the kids!

We contacted our local ice company and purchased several 40 lb bags of snow which they delivered. The idea was for the children to make snowmen at one of our "stations". I had carrots, tree branches, buttons, jewels, and wiggly eyes for them to choose from. However, I think the kids found it most fun to just slide around in and throw at one another.





We set out a gingerbread decorating station.

We had an Elf Wrapping Station. At the beginning of the party I handed out elf hats from Oriental Trading Company and told the kids that Santa needed help putting the finishing touches on the gifts by adding ribbons and bows. Then, they were to add their name on the back so we knew which elf inspected it. .... They did not know that these were actually their "party gifts" and the name tags on the back was to help "Santa" call out names at the end of the party once he made his grand appearance.




 

I found these cute little plastic reindeer jars at the Dollar Tree and thought they would be perfect for adding "Reindeer Food" into... however, the 1st store only had 8 so I began searching other stores in the area until I had to realize I was getting neurotic about these dang reindeer jars and that no... it was not healthy to drive 10 miles to pick up the 1 jar that the store manager said he had left, sigh, so I caved and bought the Santa ones to have as back ups. I had to giggle to myself when I had 4 reindeer left over after the party because lots of kids preferred the Santa (Mama Mia... I could have saved a bundle on gas and on headaches had I allowed myself the grace to know that it is okay if reindeer food does not necessarily make it into a reindeer bottle) ;)










After the "stations" had been thoroughly visited it was time to cut the cake...which was also Toby's cue to head into the bedroom to change into the Santa costume we borrowed from a friend. 






Santa and his Chief Elf had been instructed that they were not to come out of the house until I had the kids seated and I had read a book to them....



And then the time had arrived.... Santa made his debut.
....and he came bearing gifts, the presents they had finished wrapping at the "Elf Station"


Toby and I had to laugh that night.... about how much "power" comes along with wearing the big red suit. Kids crawled up on his lap unsolicited and one sweet little guy in particular looked him square in the eye and asked him if he was on the "naughty" list?? He got hugs... and kids lingering around not wanting to say good bye. One dad told me later that his little girl told him, "At first I thought it was Reid's daddy... but then I noticed hair on his hands and thought that must mean it really is Santa" ...Oh my gosh, kids are so funny! Even Reid was staring at Toby trying to figure it all out. 

And as for Mrs. Claus... though she is best known for her fabulous cookie baking abilities and managerial skills with the elves, she is also known to have a bit of a sassy side to her that she unveils from time to time ;).

Reid, we had so much fun celebrating your little life! Happy 5th birthday!We love you..... to the North Pole and back!!