Showing posts with label Hospital Walls. Show all posts
Showing posts with label Hospital Walls. Show all posts

Wednesday, December 2, 2009

I Can't Believe It's Been A Year... Heart Update


I can hardly believe it was a year ago today that our littlest guy came out of the operating room looking like this.... For those new to our blog, this was Reid's second open heart surgery. The first was to fix an ASD, a VSD, and his mitral valve when he was 7 months old. The second surgery, just before his 2nd birthday, was to further repair the mitral valve which had some moderate to severe leakage. The surgery seemed a success at first but then things went a little south and it was thought he would need to go back into the operating room for surgery # three to replace the valve altogether with a metal one before he would be released...which quite possibly could have caused more complications and more surgeries down the road. However, long story short (or read here for posts from that time) over a course of several hand wringing days his swelling and excess fluid had dissipated and they decided to send us home to see if we could get a few more years out of his own valve before needing to completely replace it. But............ drumroll please...........I have not updated on his heart (shame on me) until now and as of last month he is now completely heart medicine FREE......AND his last echo showed a near perfect heart. The cardiologist said that if he keeps on like this there will not be a need for another surgery. Makes this mom's own heart very, very happy!!

Reid's surgery happened to be scheduled on Toby's 40th birthday.....which means TODAY is his birthday.....Happy Birthday Toby! We love you!

Below are pictures of what his little "zipper" looks like today, Reid in his "I did it" shirt because it just seems appropriate, and then him just being his little hambone self!

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Thursday, October 30, 2008

October: Down syndrome Awareness Month (Post #17)- If Hospital Walls Could Speak

I  was just up at the hospital to pick up a prescription for Reid... and as I came up over the hill and began looking down at the lights of the hospital, I was flooded with a thousand different feelings, moments, and experiences that that hospital held for me within its walls. And that's just me...just imagine how many others, it is really powerful when you think of it. So many stories are held within its walls... stories of birth, and hope, but also heartache, and grief. Next to church, I would say it is where most prayers are lifted up. A place that even those not accustomed to prayer find themselves on their knees. I know I have done my share of praying within it's confines.

When I saw the lights tonight I focused in on the room that I knew to be the one Reid stayed in after his heart surgery in August of 2007. Sobering really. I was reminded of the kindness the doctors and nurses bestowed on us...and the plastic walls of Reid's crib which were plastered with pictures of him and his brother, Toby and I loving on him, and of his little friends that he had made in his 7 1/2 months of life. I was reminded of the day he was born, same floor just different wing, and the anguish I felt after hearing the news that they believed he had Down syndrome. I remember both Toby and I nearly buckling to our knees when our cardiologist who after going over Reid's heart condition and drawing diagrams began to leave the room, but decided to open the door again and stuck his head back in to say, "Congratulations". We hadn't heard that except from family...not yet, and tears began to fall. It is very fitting actually that Dr. Loo is in the heart business, he has a HUGE heart himself. You can't imagine how much we needed to hear that.

As I continued on my way tonight to run my errand, I saw the children's wing that has been under construction for quite some time and drew my eyes to the area where I knew a very special beam was placed...a beam I had signed in honor of our family and the doctors who helped Reid through surgery. It was the last beam to be placed and the hospital asked for the community to come out and sign it...we had great reason to participate as we had just brought Reid home after a 2 week stay to repair his heart. I am so glad we took the time to do that, I will always look in that direction and know that under all the plaster and paint...that steel beam has our names on it...no one else would of known that unless I shared it...just another story that hospital holds captive.

I parked and scooted up the stairs toward the pharmacy but not before taking in the spot where the picture that is posted was taken. The morning of New Year's Eve 2006 we were bringing our baby home to continue our story (and yes...sorry east coast visitors those are indeed flip flops in the dead of winter). Our story is now 22 months in the making...and as the story goes it looks like we will make another extended stay at this particular hospital in late November or early December for heart surgery #2, one that was not anticipated and certainly not welcomed, but Reid's little body is deeming it necessary so we must.

As I write this I have two friends who have their sweet little girls in the hospital, Presley... who is fighting pneumonia and Zoey who is fighting a childhood enemy, leukemia. I ache for them, the only chapter in your child's life where a hospital should be included is the first chapter...of birth. We could do without the rest, most certainly the moms of these precious little ones would agree! Please click on their names to find your way to their blogs and...please pray for them as their stories continue to unfold. 

Wednesday, August 6, 2008

LUKE AND REID

I have been blessed with two boys, Luke and Reid. Luke just turned 7 and is the best big brother Reid could ask for. He is hysterically funny, smart, and oh so sensitive. Just recently, he started to cry out of the blue stating, “I was just thinking, sigh, in 12 years I am going to be 19….more sighs…and I am sad because I don’t want to leave our house!”. Yes, we may not have girls, but we definitely do not lack drama around here!

And then we have our sweet Reid. Reid was born on December 28, 2006, making him 19 months as I write this. Reid’s birth and all that has come with it has changed us as a family forever…and I am forever grateful for the lessons his life has taught me. It was in the delivery room that we heard the words no parent wants to hear, “Your son is showing signs of Down syndrome…we need to run some tests”. The room spun and a thousand thoughts, fears, and worries flooded us. Neither my husband nor I knew anything about Down syndrome , but I remember having this strong feeling that I did not want either of us to do any research yet, I didn’t want a bunch of facts and statistics…

I didn’t want to know Down syndrome, I just wanted to know our son.

Weeks went by before we started our homework beyond what we immediately needed to know. We’ve since learned quite a lot but at the same time we are realizing this will be a lifetime of learning for us, with Reid doing most of the teaching.

As our family continues on this new journey we have met so many incredible families along the way…some in person and some through formats such as this. I cannot tell you how many photo montages and blogs I have scoured over in the wee hours of the night with tears streaming down my face, connected to strangers across the country by one extra chromosome and yet somehow not feeling like strangers at all. I am grateful to be on this journey with you all and to learn from one another while Raising Reid and his big brother Luke.

Sincerely,

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